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Carrie Bergeron-Desai
Carrie is a thirty-year old yound adult with Down Syndrome from upstate New York. She radiates joy and warmth when you meet her. This trait has been evident ever since she was a hypotonic infant with a wobbly head!
Carrie is presently in a NYS Self - Determination transition plan, living in Rome, NY with her husband. She is married to Sujeet Desai. They were married this past July in two lovely ceremonies, one Hindu and the second Christian and are settling into their new life together. They have staff support with their daily routines and are doing very well in this transition time.
Carrie volunteers two days a week at the Upstate Cerebral Palsy Center working with toddlers. She received a two - degree (obtained in four and a years) from Herkimer County Community College as a teacher’s assistant in 2003. She also, volunteers at the Rome Memorial Hospital three days a week doing office work and helping out with the Tai Chi program on the geriatric floor. Phyiscal fitness is maintained by daily visits to the local YMCA plus two classes in Tae Kwon Do (maintaining black belt status), music, and dancing.
She is a former board member of the National Down Syndrome Congress Board of Directors and now serves on the Self Advocacy Committee and the Youth and Adult Committee. She loves to share her experiences as a young adult with Down Syndrome. Carrie and her husband, Sujeet, will continue to present at conferences. They radiate their love for each other and also complement one another with her flair for speaking and his flair for music, making a wonderful lifelong team!
Posted on: Monday, August 11, 2008 at 4:27 pm
self advocates.
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